Confidence to travel
Colin is now very independent and often comments about how the services provided by Guide Dogs NSW/ACT have improved the quality of his life.
Colin, a professional ice skater who performed all over Europe, has Lyme disease, contracted through a tick bite when he was 25. At the time, the doctors explained that this would affect his vision later in life. Colin’s sight began to deteriorate around 10 years ago and has declined slowly since. He describes his vision as like looking through fog. As a result of his vision loss, Colin did not leave his house very often unless accompanied.
Following a fall, Colin referred himself to Guide Dogs. Support from Guide Dogs NSW/ACT initially focussed on a low vision assessment to determine if any low vision aids would assist Colin with reading and safe road crossings. He was initially reluctant to receive a long cane.
However he knew he needed training in how to use one due to his deteriorating vision. This involved a weekly one-hour session for 3 months. Guide Dogs NSW/ACT successfully advocated on Colin’s behalf to have his local council install a pedestrian island near his home, as he was having difficulty crossing there during peak hour.
After gaining increased confidence and independence, Colin decided to start GPS training and absolutely loved it. He’d never used a computer or mobile phone before, so he initially found the technology difficult to learn and understand. His enthusiasm and positive attitude helped him succeed. GPS has given Colin the confidence to travel to unfamiliar areas. These include trips to Manly, the City and Wisemans Ferry to name a fewplaces he regularly travels to. Colin even uses his GPS enabled phone to identify his bus stop, which means he doesn’t have to rely on the driver or other passengers.
Colin is now very independent and often comments about how the services provided by Guide Dogs NSW/ACT have improved the quality of his life. Recently, he made the hard decision to stop travelling independently at night, as he finds this extremely difficult. Yet Colin is not too worried about this, as he makes the most of his time getting out and about during the day!
Hugo is no longer apprehensive walking
without holding onto
an adult’s hand
3-year old Hugo was born with congenital abnormalities resulting in him having no vision in one eye and low vision in the other. Hugo’s mother was concerned about his motor skill development and ability to use his remaining vision. She noticed he was hesitant when moving around, especially on uneven surfaces, and observed he was often comfortable playing with a hat over his eyes.
Following a referral to Guide Dogs, Hugo’s confidence and speed of movement increased considerably when he was given a pre-cane device. He was no longer apprehensive walking without holding onto an adult’s hand, or needing to use the support of a nearby wall. Hugo’s mobility lessons progressed to long cane training a couple of months later.
Hugo is now a confident youngster who is excited to go out and happily takes his cane wherever he goes.
Doreen and her Instructor Fiona Henwood
At age 45, Doreen was diagnosed with PXE. PXE or Pseudoxanthoma elasticum is a rare condition which can affect, among other things, the skin and central vision. Over the following years her vision slowly deteriorated. At age 56 Doreen had to give up work and at age 62, she was declared legally blind. Doreen is now 77.
Doreen attended a Stepping On program in 2011 where she found out about the Miniguide, a small handheld device which sends out ultrasonic beams. When it detects an object the Miniguide provides feedback, either vibration or an auditory beep, depending on the model. The closer you are to an object, the more feedback the Miniguide provides. Doreen now uses the Miniguide regularly in conjunction with her support cane.
Doreen also has an ID cane, which she uses when travelling, but mostly she gets around with her support cane and Miniguide. The Miniguide has increased her confidence significantly.
“I often go walking by myself and the Miniguide enables me to locate objects, such as poles, at eye level. It is a very, very good gadget. I really can’t live without my support cane. Everywhere I go, so does my cane”, commented Doreen.
Motivated to be independent
Jeanette is currently training with her third guide dog, Takira, after a break of twenty years since her second dog retired.
Jeanette is currently training with her third guide dog, Takira, after a break of twenty years since her second dog retired. She is enjoying walking at a faster pace again with her new dog.
Even though Jeanette is of a generation not generally used to using technology, she embraced a program provided by Guide Dogs NSW/ACT in how to use a Trekker Breeze talking GPS. The device tells Jeanette where she is on a bus route, and has also assisted her with locating safe road crossing points and negotiating tricky turns on paths.
Jeanette’s main travel route is visiting her local shops in Wentworthville. While she is not travelling on her own just yet, Jeanette is very motivated to be as independent as possible, and we feel it won’t be long before she ventures out on her own.
Life has begun to turn around
Wendy’s confidence is growing and she can now better manage her vision loss and have more control over her life
Wendy Williams, who had experienced a number of falls due to low vision caused by a stroke and other conditions, was concerned she was going ‘totally blind’ when she wasn’t. She was losing her self-esteem and independence and was relying on others to do everyday tasks. While she uses a wheeled walker to get around, her range of activity was limited due to growing anxiety and a fear of falling.
Wendy’s vision loss has also been confusing for her, her family, friends and staff at Calare Nursing Home, Orange. As she wears glasses it’s easy to assume that Wendy has normal vision. In reality, as a result of cataracts, astigmatism and a stroke, Wendy has lost the ability to see things at close range or down low. Depth perception is also a problem, meaning she could miss a step or lose her balance on uneven surfaces.
Making things even more confusing is that Wendy’s vision fluctuates. Since working with Orientation & Mobility specialist Judy Rogers from Guide Dogs NSW/ACT’s Central West office, in conjunction with Calare’s physiotherapy staff, Wendy’s life has begun to turn around. “We have been helping Wendy to better understand the complexities of her vision loss,” says Judy, who tailored a training program to suit Wendy’s needs. “Her confidence is growing and she can now better manage her vision loss and have more control over her life.”
The program Judy has developed for Wendy exemplifies the diversity of specialised services Guide Dogs NSW/ ACT provides free of charge to help people with any level of vision loss to get around safely and independently. Judy said a key focus of their work has been encouraging Wendy to manage her anxiety associated with loss of balance when faced with uneven surfaces.
Recently, Wendy travelled with Judy by car to a local coffee shop to give her the opportunity to practise getting in and out of a car; using her walker in a crowded and unfamiliar environment; managing money; dealing with staff; and ordering coffee. Judy says Wendy has worked hard to achieve her goals and also attributes the program’s success to the involvement and support of Wendy’s physiotherapy team, support staff and the management at her nursing home.
As the program continues, Wendy is very excited with her achievements and is keen to learn more and progress further.
For more information on services and an assessment of vision, contact your local Guide Dogs Office:
Your first patient at See Well Australia is Mrs Thelma Scope. Through working with Mrs Scope you will come to understand the concept of low vision and the impact of eye disease when treatment is no longer an option. You will be exposed to the roles and approaches of a range of professionals who might work with a patient with vision impairment. You will be challenged to determine your role as an Orthoptist in this multidisciplinary environment.
There is an overarching question you will need to answer, and scenarios with supporting information to help guide your understanding and formulate your answer. You should spend around 6-8 hours with this topic.
What is the impact of eye disease on how you see and how you feel? Who can help you with the challenges you will face as a vision impaired person?
Use the scenarios and resources below to formulate your own response to this question. You are looking for reasons as well as proposed solutions.
Primary case study:
Mrs Thelma Scope - coping with vision loss
Supplementary case studies:
- A group of elderly ladies with bilateral AMD
- A young woman with Stargardt disease
- A variety of patients: Edith Wright; Mark Bollinger; Jack Tomazetti; Barry Gentle; Peter Brown; Margaret Moriartis and Martin Skase
Mrs Thelma Scope is a patient at See Well Australia. Through Mrs Scope you will come to understand what low vision is, how it is defined and what it means to have an impairment. In addition, you will consider the epidemiology and impact of low vision in Australia.
(Keywords: #low vision #vision impairment #legal blindness)
Watch the What is Low Vision? lectorial where you will find out about your new patient Mrs Thelma Scope.
Consult the resources below in addition to finding your own resources to answer the Task 1 questions. When answering the questions, think about what you know so far about Mrs Scope. Discuss and compare your answers with the students in your group.
Questions - Task 1
- Why is it important to a patient that we define disability or vision impairment?
- How does the World Health Organization (WHO) define ‘low vision’
- According to the WHO definition, can you classify Mrs Scope as having ‘low vision’?
- What is the definition of ‘impairment’? How does this definition specifically relate to vision?
- Do you think Mrs Scope has an ‘impairment’? Discuss.
- Define ‘disability’ and explain how this relates to the sense of vision.
- Do you think Mrs Scope is disabled? Explain why/why not.
- Define ‘handicap’ and explain whether this definition can be applied to Mrs Scope.
- Do you think you have enough information about her case history in order to classify Mrs Scope as either having impairment, disability or handicap? What other information would you need?
(Keywords: #economic cost #financial impact #direct & indirect costs)
Referring to the Eye Research Australia (Clear Insight) Economic Impact and Cost of Low Vision in Australia publication, answer Task 2 questions. Don't forget to consider your patient Thelma when answering the questions.
Questions - Task 2
- Of a composition of the total cost of vision disorders in 2004, what is the total cost of suffering? What do you think “cost of suffering” means? Explain your answer in the context of Mrs Scope.
- On page 4 of the report it states: “the share of pharmaceutical costs has increased to 11.4% of the total and of ‘other health practitioners’ to 10.6%. Why would this be so? What would contribute to this?
- There are significant indirect costs associated with vision impairment. In the context of Mrs Scope, explain how each indirect cost could impact on her life.
- Mrs Scope is 73 years old and she is expected to live quite a few more years, especially as she is generally healthy. What are the most likely reasons that her vision impairment would prevent healthy and independent ageing in her case?
- What are the top 3 causes of blindness in people aged over 40 in Australia?
- What age groups are most pre-disposed to each of the 3 causes you selected?
- What are the projected forecasts for visual impairment and blindness in Australia for the future?
- Why is addressing vision impairment a serious issue in this country?
(Keywords: #visual function #blurry vision #central field loss #peripheral field loss)
Next, we will analyse the likely impact of a particular ocular disease on a person’s visual function. You will also consider the impact vision impairment might have on a person's social interactions and general well-being. You will therefore be able to discuss the psychosocial and physical impacts related to different forms of vision impairment.
Begin by watching this introductory video
(Keywords: #functional vision #blury vision #central field loss #peripheral field loss)
Watch the three short lectorials on the three areas of functional vision loss and answer the related questions.
- Blurred vision
- Central field loss
- Peripheral field loss
Questions - Task 4
1. Blurred vision no field loss:
- What are the ocular structures involved?
- What is the function of these structures?
- Explain in terms of these functions the impact these types of eye diseases or systemic conditions will have on sight.
2. Central field loss:
- What is the ocular structure involved?
- What is the function of this structure?
- Explain in terms of these functions the impact on sight of disease impacting this part of the eye.
3. Peripheral field loss:
This is the most complex area in relation to function and can be considered as disseminated or scattered field loss, hemianopia or half field loss and severely constricted field loss.
- What structures of the vision pathway might be impacted?
- What is the function of these structures?
- Explain in terms of these functions the impact on sight.
(Keywords: #impact of vision loss #psycho-social)
As an introduction to this task, have a look at the RNIB's website on Coming to Terms with Sight Loss.
Next, listen to the two audio recordings of patients from See Well Australia who have vision impairment. They are describing the impact of the impairment on their lives. Make notes to help you answer the questions related to each recording.
- Audio 1 - Three elderly ladies
- Audio 2 - Lesley, a young woman with Stargardt disease
After you have listened to the recordings, work through these questions.
Questions - Task 5
Meet Mrs Kirkman, Mrs Muirhead and Mrs Sevoir.
All are older women who have bilateral AMD that has progressed to the wet phase - all are legally blind. Mrs Kirkman is a widow who also has significant hearing loss, she wears hearing aids. Mrs Muirhead is also a widow she lives in a large rural city. Mrs Sevoir is married and living with her husband in metropolitan Melbourne.
As you listen to their stories make notes on the following:
- How has sight loss impacted on the lives of the three women?
- Do any of them refer to their living situation?
- What are the emotions they express in relation to losing their sight?
- How has sight loss impacted on their social relationships?
- What are some of the strategies they are using to overcome the handicaps of sight loss?
- One has a very philosophical out look, describe this lady’s response.
- Is there a difference in response between the ladies and what seems to be making this difference?
Now meet Lesley a young woman in her 30’s. She is legally blind due to Stargardt Disease. Lesley lives alone in an inner Melbourne suburb.
As you listen to Lesley’s story make notes about the following questions:
- How did Lesley first realize she was losing her sight?
- What was her initial response to sight loss?
- How did sight loss impact on Lesley’s working life?
- How did sight loss impact on Lesley’s personal life?
- What has been Lesley’s emotional response to sight loss and her perception of the thoughts of others?
- What are Lesley’s strategies for coping?
- What comments does Lesley make about the way people treat her?
Consider the differences in response and impact between Lesley and the older ladies. Discuss your answers with your group and try to provide answers to all of the above questions.
(Keywords: #psycho-social #impact)
This task utilises case studies and additional materials that will allow you to consider the impact of sight loss on social and emotional well-being.
First, watch the interview with Krister Inde Support needed when one loses his or her vision
Once you have watched Krister's movie, work through the questions below. Refer to Krister Inde's book See bad feel good.
Questions - Task 6
1. The following passage has been taken from Krister Inde’s book See Bad Feel Good, an autobiographical account of sight loss. Discuss the following statements and think about what they are telling you of Krister’s response to his diagnosis.
"There are a lot of aids and devices that I’m sure you can make great use of. But as I said, there is, unfortunately, no medical treatment that we can offer you at this time.” Period. Nowhere to run. It’s a fact. You are locked in a room and there is no key to the nonexistent door. It comes as a shock: You are losing your sight and it is hell. A hell you have not chosen, for which you are not responsible, and that you hate so much that you avoid believing it’s true, avoid thinking about it and you suppress it entirely. It simply hasn’t happened!"
2. What are the phases a person goes through after losing sight as described by Krister Inde in his book See Good Feel Bad?
3. Discuss in your groups how you would feel if you lost your sight – prepare a brief group statement to share with the class summarising your thoughts. The RNIB has a good resource Coming to terms with sight loss that you can refer to.
(Keywords: #multidisciplinary #teams)
Do some research on each of the following professions to determine the assistance they provide for a person with vision impairment.
- Low Vision Therapist
- Occupational Therapist
- Orientation and Mobility Instructor
- Social Worker
- Special Education Teacher (Vision Impaired)
These two YouTube movies might also help: Low vision occupational therapyOrientation and mobility
Other resources & links
Statewide Vision Resource centre
Who does what in vision care
Better Health Channel - Orthoptists
(Keywords: #case study)
In your group, work through the following case studies related to functional impact of sight loss & multi-disciplinary intervention, which require you to analyse information and then discuss the likely functional impact associated with each case. You will then determine the appropriate professionals to assist in the management of each patient.
|Case Study 1 - Edith Wright|
Edith Wright is 70 years old. She has been diagnosed age-related macular degeneration (AMD).
|Case Study 2 - Mark Bollinger|
A referral comes to you from the visiting teacher service, asking you to assess a 17 year old boy who has been recently diagnosed with Leber's optic atrophy. Mark presents as a mature and intelligent young man. The history is of a sudden onset, bilateral centre field loss.
|Case Study 3 - Jack Tomazetti|
Jack is a 17 year old boy who had acid thrown in his face in a classroom fight and has severe corneal scarring as a result. Jack's vision is reduced to 6/24 bilaterally. He is hoping to gain an apprenticeship in the building industry and has a prospective employer.
|Case Study 4 - Barry Gentle|
Whilst sitting in the staff room at See Well Australia eating lunch, you are approached by the Occupational Therapist (OT), she is particularly concerned about a patient who has lost all interest in the cookery class. She thinks his sight has deteriorated and would like you to assess him.
Mr Gentle has been completely devastated by the sudden loss of vision in his left eye. He has given up any hope of retaining some independence and is prepared to rely on his wife totally. Mrs Gentle has always looked after the household and is prepared to do anything for her husband, but she has cataracts and her vision is now reduced to Visual Acuity R) 6/18 L) 6/ 12.
|Case Study 5 - Peter Brown|
Peter is a 23 year old university student who is studying accounting. Peter has significantly reduced visual fields due to retinitis pigmentosa (RP), he was first diagnosed with this disorder when he was 7 years old. Peter’s father also has RP.
Visual Acuity R&L) 6/ 6, Near n5
|Case Study 6 - Margaret Moriartis|
Margaret is a 50 year old type 2 diabetic. She has a demanding job and is inclined to miss lunch and buy take away for her evening meal. She currently takes tablets to control her diabetes which she often forgets when racing out in the morning. Her GP has warned that if she does not reduce her blood sugar she will be put on insulin.
|Case Study 7 - Martin Skase|
Martin is a 45 year old business man who has suffered a stroke impacting his right temporal lobe. Martin is married with two teenage children.
Resources and help
- Focus on Low Vision is an excellent publication by the Centre for Eye Research which will be useful to complete all the topics in this enquiry. You should refer to it often.